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Synapse

Sage Bionetworks
United States of America
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About

Launched: 2013
Record Updated: Dec 09, 2024
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Repository service
Synapse is a cloud-based data repository and sharing platform where researchers can share and describe content to co-analyze, learn from, and improve knowledge of health and disease.
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Mission

Synapse was created and is managed by Sage Bionetworks.
Sage is a nonprofit health research organization based in Seattle, Washington. We were founded in 2009 on the basis of open science and patient advocacy. We aim to promote reproducible research and responsible data sharing throughout the biomedical community. That’s why we created Synapse.
Ethical use of data is of the utmost importance to Sage, and we employ robust governance policies and procedures to monitor compliance and ensure data privacy.
In addition to, and in conjunction with Synapse, Sage operates multiple platforms and data portals that serve the current and future needs of our communities.

Key Achievements

https://sagebionetworks.org/impact

Technical Attributes

Maintenance Status

Actively Maintained

Open Code Repository

Implemented
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Technical Documentation

Implemented
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Code License

Implemented
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Open API

Implemented
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Open Data Statement

In Progress

Technical Attribute Statements

Programming Languages

  • java
  • python
  • r

Technology Readiness Level

  • Actual system proven in operational environment

Code Licenses Used

  • Apache License, Version 2.0

Content Licensing

  • Creative commons licenses

Standards

Metadata

  • JSON
  • JSON-LD
  • REST
Other:
OpenAPI

Persistent Identifier

  • ORCiD
Other:
DataCite DOI's

Security

FISMA-Moderate , HIPAA

Hosting Options

  • Through solution only

Integrations

  • Creative Commons Licenses
  • DataCite

Community Engagement

Code of Conduct

Implemented
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Community Engagement

Implemented
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Community Statements

Community Engagement Activities

  • Blogs
  • Social media
  • Staff roles with responsibility for community engagement
  • User research

Engagement with Values Frameworks

  • FAIR Guiding Principles for Scientific Data Management and Stewardship

Policies & Governance

Policies

Privacy Policy

Implemented
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Transparent Pricing and Cost Expectations

Implemented
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Policy Statements

Board Structure

  • Advisory board or steering committee

Board Level

Strategic Guidance: The Sage Board guides our long-term direction, ensuring alignment with its mission. This includes setting priorities, approving strategic plans, and identifying major goals to drive scientific impact.
Financial Oversight: Our Board oversees Sage’s finances, ensuring responsible stewardship of resources. This includes reviewing budgets, ensuring transparency in financial reporting, approving major expenditures, and sometimes assisting in fundraising efforts.
Outreach and Advocacy: Sage Board members act as ambassadors for the organization, helping to promote its mission to external audiences, advocate for scientific issues and patient impact, and build partnerships with other institutions.
Leadership and Organizational Health: Our Board oversees the hiring and performance of our President and CEO. They also review high-level staff appointments.
Monitoring and Evaluation: The Board tracks Sage’s organizational progress toward its goals, evaluating the impact of programs and initiatives to ensure alignment with our nonprofit mission.

Community Governance

  • None

Additional Information

Organizational History

https://en.wikipedia.org/wiki/Sage_Bionetworks

Organizational Structure

Business or Ownership Model

Non-profit organization

Full-time Staff

More than 20

Volunteers

0

Non-profit Status

501(c)3

Current Affiliations

No Affiliations

Funding

Primary Funding Source

  • Contributions

Funding Needs

Investment is essential for Sage Bionetworks to advance our mission of open science and radical collaboration. Securing additional funding will enhance our data-sharing platforms, enabling more efficient access to biomedical data, accelerating discoveries, and promoting innovative health solutions. As a 501(c)3 organization we rely on governmental support and collaborative partnerships and investment to break down silos in science and technology, paving the way for optimal human health through open science.
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